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Ending the Silence on Stillbirths: Critical Data Gaps, Challenges, and Solutions

Session Information

Every 16 seconds, a baby is stillborn. This amounts to an estimated two million stillborn babies globally every year. These deaths reach far beyond the loss of life. Women and their families often face traumatic, long-lasting impacts after experiencing a stillbirth. Profound psychological suffering and stigma from their communities are common. 

Even more tragically, most of these deaths could have been avoided with high-quality care during the antenatal period and birth. Over 40% of all stillbirths occur during labour; many could have been prevented with improved monitoring and access to emergency obstetric care.

Despite the magnitude, these losses remain a neglected issue. Worldwide, data on stillbirths are largely absent, resulting in serious gaps in service delivery for pregnant women and poor support services for mourning mothers. Among the 195 countries for which the United Nations Inter-Agency Group for Child Mortality Estimation (UN IGME) generates stillbirth estimates, nearly a third have either no stillbirth data or no quality data. 

These gaps in counting and reporting of stillbirths must be urgently addressed. 

The panel will address three key questions:

1) Which critical data gaps must be closed to end preventable stillbirths?

2) Which challenges stand in the way of collecting stillbirth data?

3) Where do we see innovative solutions to improved stillbirth data availability and quality?

The session will bring together governments, international organizations, and civil society to share expertise and experience, highlight best practices, and provide practical recommendations on collecting stillbirth data and improving evidence to end preventable stillbirths.

May 11, 2023 11:50 - 13:05(Africa/Johannesburg)
Venue : Room: 1.43-1.44
20230511T1150 20230511T1305 Africa/Johannesburg Ending the Silence on Stillbirths: Critical Data Gaps, Challenges, and Solutions

Every 16 seconds, a baby is stillborn. This amounts to an estimated two million stillborn babies globally every year. These deaths reach far beyond the loss of life. Women and their families often face traumatic, long-lasting impacts after experiencing a stillbirth. Profound psychological suffering and stigma from their communities are common. 

Even more tragically, most of these deaths could have been avoided with high-quality care during the antenatal period and birth. Over 40% of all stillbirths occur during labour; many could have been prevented with improved monitoring and access to emergency obstetric care.

Despite the magnitude, these losses remain a neglected issue. Worldwide, data on stillbirths are largely absent, resulting in serious gaps in service delivery for pregnant women and poor support services for mourning mothers. Among the 195 countries for which the United Nations Inter-Agency Group for Child Mortality Estimation (UN IGME) generates stillbirth estimates, nearly a third have either no stillbirth data or no quality data. 

These gaps in counting and reporting of stillbirths must be urgently addressed. 

The panel will address three key questions:

1) Which critical data gaps must be closed to end preventable stillbirths?

2) Which challenges stand in the way of collecting stillbirth data?

3) Where do we see innovative solutions to improved stillbirth data availability and quality?

The session will bring together governments, international organizations, and civil society to share expertise and experience, highlight best practices, and provide practical recommendations on collecting stillbirth data and improving evidence to end preventable stillbirths.

Room: 1.43-1.44 International Maternal Newborn Health Conference 2023 information@imnhc.org

Sub Sessions

Global Perspective on Stillbirth Burden and Data Gaps

Panel 11:50 AM - 01:05 PM (Africa/Johannesburg) 2023/05/11 09:50:00 UTC - 2023/05/11 11:05:00 UTC
None
Global Guidelines and Local Adaptations
Targets and Metrics
Presenters Lucia Hug
Statistics Specialist, United Nations Children's Fund (UNICEF)
Co-authors
DY
Danzhen You
Chief Of Demographics And Senior Adviser Statistics And Monitoring, United Nations Children's Fund (UNICEF)

Stillbirth Surveillance and Data Compilation in Sri Lanka

Panel 11:50 AM - 01:05 PM (Africa/Johannesburg) 2023/05/11 09:50:00 UTC - 2023/05/11 11:05:00 UTC
None
Global Guidelines and Local Adaptations
Global Guidelines and Local Adaptations
Presenters Imbulana Jayaratne
National Program Manager - Child Morbidity & Mortality, Family Health Bureau - Ministry Of Health

International Classification of Diseases (ICD) 11 and Perinatal Audit

Panel 11:50 AM - 01:05 PM (Africa/Johannesburg) 2023/05/11 09:50:00 UTC - 2023/05/11 11:05:00 UTC
None
Targets and Metrics
Innovative Tools and Strategies
Presenters Hannah Blencowe
Associate Professor, The London School Of Hygiene & Tropical Medicine (LSHTM)
Co-authors Allisyn Moran
Maternal Health Lead, World Health Organization

Improving Documentation of Stillbirths in Community Surveys to Facilitate Stillbirth Prevention

Panel 11:50 AM - 01:05 PM (Africa/Johannesburg) 2023/05/11 09:50:00 UTC - 2023/05/11 11:05:00 UTC
None
Global Guidelines and Local Adaptations
Innovative Tools and Strategies
Presenters Rakhi Dandona
Professor, Public Health Foundation Of India
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Session Participants

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Session speakers, moderators & attendees
Professor
,
Public Health Foundation of India
Associate Professor
,
The London School of Hygiene & Tropical Medicine (LSHTM)
National Program Manager - Child Morbidity & Mortality
,
Family Health Bureau - Ministry of Health
Statistics Specialist
,
United Nations Children's Fund (UNICEF)
Chief of Demographics and Senior Adviser Statistics and Monitoring
,
United Nations Children's Fund (UNICEF)
Director
,
Ministry of Health and Population
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Slides

IMNHC_1684531241lucia_hug.pptx
Global Perspective on Stillbirth Burd...
4
Submitted by Lucia Hug
IMNHC_1690916326IMNHC_1684531286imnhc1425_r_dandona.pdf
Improving Documentation of Stillbirth...
1
Submitted by Lucia Hug
IMNHC_1684531315329_imbulana_2.pptx
Stillbirth Surveillance and Data Comp...
1
Submitted by Lucia Hug
IMNHC_1684531391hannah_blencowe_at_1150_in_1.43.pptx
International Classification of Dise...
1
Submitted by Lucia Hug

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